I will never forget the moment I learned my son had autism—the fear, the confusion, the helplessness—how could I ever learn all I would need to know to raise this precious little person who experiences the world in ways I can’t imagine? The Families First program at the VKC was there from the beginning—educating, supporting, and encouraging us. And they were there three years later when I lived that moment a second time, the day I learned my daughter had autism—ready to help in every way they could.

Elizabeth Stivers - Parent

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My father was a psychiatrist, and as a young child, I spent Saturdays at his clinic and so was accustomed to being with people with disabilities. Later, we lived on the grounds of a state mental health hospital, where I had many friends with different types of developmental and psychiatric difficulties. I wanted to better understand their lives and stories. At the Yale Child Study Center, my experiences with children with fragile X syndrome started me on the path of looking at other genetic syndromes, since they offer unique windows for understanding the connections among genes, brain, and behavior, as well as specific ways to optimize interventions with individuals and families. My husband and I moved to Vanderbilt because we wanted to be part of a community of researchers and others dedicated to understanding people with developmental disabilities on a number of different levels—genetics, brain science, treatments, supporting families, public policy, and advocacy. The VKC embodied all of that in one place.

Elisabeth Dykens, Ph.D. - Psychology, Psychiatry, and Pediatrics

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[The VKC] is an absolutely amazing place to work, but more importantly, people here truly help to change lives for the better. I’ve worked here in some capacity since I graduated from the Master’s of Special Education program in 2007, and I cannot think of a better place to refer families who have a loved one with a disability. In my own work, we are helping high school students with autism and their families prepare for the transition from high school, and we are also helping faith communities as they support people with disabilities to find and hold employment.

Jenny Gustafson - Special Education Alumna and VKC Disability Professional

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The VKC has become a home to my family in the few short years since my daughter’s birth. We’ve benefited in countless ways from its research, professional training (I was a LEND Family Trainee), workshops, and other community programs. I also have the opportunity to learn and give back to the Center as part of the Community Advisory Council and the Public Policy Committee. The VKC has been an incredible resource to me as a parent but has also been critical in my development as a professional, helping me to become a voice for other families through special education advocacy. From both perspectives, I cannot overstate the importance of the Center’s role in creating more meaningful and productive lives for people like my daughter, and I am proud to be part of an organization that continues to lead this charge both locally and nationally.

Christine Sartain - Parent, LEND Trainee, and Disability Advocate

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