My perspective is that of a parent whose son received early intervention services at the Susan Gray School. Not only did Alex thrive and receive a sound foundation for his future development, but the supports I received strengthened my parenting skills and imparted critical knowledge that led me to become an effective advocate for him. Alex participated in important research that benefited him and helped deepen understanding about best practices in meeting the needs of children and adults with disabilities and their families. I am indebted to the Vanderbilt Kennedy Center for its positive impact on my life and that of my son, and for its continued dedication to unlocking the mysteries of human development.

Dara Howe - Parent

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Recently a mother shared with me that over four decades ago she gave birth to a baby girl with Down syndrome. The medical staff and others strongly encouraged her to give her daughter over to an institution as it was the best option at the time. While in the hospital a social worker from the Kennedy Center discussed services and resources available to her if she chose to keep her child in her care. As a result of their conversation she decided to raise her child with the support of her family and this Center. This family is currently thriving in their community. To work somewhere that touches people’s lives on such an incredible level is an experience I am very fortunate to be part of.

Sarah Harvey - VKC Disability Professional

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The VKC has become a home to my family in the few short years since my daughter’s birth. We’ve benefited in countless ways from its research, professional training (I was a LEND Family Trainee), workshops, and other community programs. I also have the opportunity to learn and give back to the Center as part of the Community Advisory Council and the Public Policy Committee. The VKC has been an incredible resource to me as a parent but has also been critical in my development as a professional, helping me to become a voice for other families through special education advocacy. From both perspectives, I cannot overstate the importance of the Center’s role in creating more meaningful and productive lives for people like my daughter, and I am proud to be part of an organization that continues to lead this charge both locally and nationally.

Christine Sartain - Parent, LEND Trainee, and Disability Advocate

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My interest in studying developmental disabilities arose from both my work and my educational experiences. Throughout college and graduate school, I worked as a teacher of children with severe to profound disabilities. Simultaneously in my Ph.D. program, I was learning about children’s development, mother-child interactions, and families of typically developing children. As a postdoctoral fellow, I began to join these two worlds. I began exploring how theories, approaches, and findings derived from work on typically developing children might apply to children with developmental disabilities. I also began examining with Elisabeth Dykens how children with particular genetic disorders differed in their behavioral development, and how behaviors of children with particular syndromes might affect their family members. The VKC combines a strongly held, multidisciplinary focus with a rock-solid commitment to children with disabilities and their families. In addition to the researchers themselves, a skilled, dedicated group of VKC staff help everyone to get things done. With support from several private foundations and federal agencies, the VKC has expanded services to persons with disabilities and their families. Where else can one work every day with such a talented, committed group of scientists, staff, and service providers, all of whom share a mission to learn about and to serve individuals with disabilities and their families?

Robert Hodapp, Ph.D. - Special Education

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