Reflections

As part of the Vanderbilt Kennedy Center's 50th anniversary celebration, families, researchers, staff, trainees, and others shared their reflections. View a sample below, and select "more" to view additional comments.

A reflection from a family
Becky and Chris Link - Parents

The Kennedy Center has been so important to our family. Our son Seth who is now 25 was born with Williams syndrome, which presents both physical and cognitive challenges. The programs at the Vanderbilt Kennedy Center have focused on Seth’s abilities and highlighted his talents. Seth has participated for the past 9 years in a music camp for individuals with Williams syndrome, which takes place in Nashville at the Kennedy Center with the campers writing and performing a song at the Grand Ole Opry and participating in research during the week. It has been transformative for Seth and he has made life-long friends through these amazing opportunities.

Becky and Chris Link - Parents

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A reflection from a professional

[The VKC] is an absolutely amazing place to work, but more importantly, people here truly help to change lives for the better. I’ve worked here in some capacity since I graduated from the Master’s of Special Education program in 2007, and I cannot think of a better place to refer families who have a loved one with a disability. In my own work, we are helping high school students with autism and their families prepare for the transition from high school, and we are also helping faith communities as they support people with disabilities to find and hold employment.

Jenny Gustafson - Special Education Alumna and VKC Disability Professional

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A reflection from a researcher
James Sutcliffe, Ph.D. - Molecular Physiology & Biophysics

I have been attracted to developmental disabilities research since graduate school, when I was involved in cloning the fragile X syndrome locus. I continued work to solve genetic puzzles related to developmental disabilities as a postdoctoral fellow studying Prader-Willi and Angelman syndrome. I have extended these efforts across the genome in collaborative efforts to discover the nature of genetic variation underlying autism. Studying how systems are affected by risk factors may ultimately lead to improved therapeutic options for vulnerable populations. The VKC is unique as a trans-institutional Center with activities spanning an extraordinary spectrum from community outreach and family support to basic research. It is this reach across so many disciplines, providing opportunities to bring different kinds of expertise and investigators together to attack the problem of diagnosing, treating, and deciphering the underlying biological basis of a developmental disorder that I find so compelling.

James Sutcliffe, Ph.D. - Molecular Physiology & Biophysics

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A reflection from a trainee

I am the proud parent of four young children, one of whom has Down syndrome. Besides benefiting from their vast array of supports and services, I am currently receiving valuable research experience as a doctoral student in special education and receiving specialized disability-specific training through the VKC.

Thomas Boehm - Parent, Doctoral Student in Special Education, and VKC UCEDD Trainee

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