Fifty years ago my husband and I had the privilege of hearing President John F. Kennedy speak to the community at the football stadium at Vanderbilt University. It was a great day. We were proud of the University. We are both graduates and my retired husband was part of the Medical faculty for 45 years. Although we were very familiar with the University and the Medical Center, we were not as connected to the Kennedy Center until the birth of our grandson William, who has Down syndrome. He is now 17. William and his parents have received innumerable services from the Center, including hands-on intervention participating in research projects and receiving support at every step of the journey.

Susan M. Spickard - Grandmother

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My interest in studying developmental disabilities arose from both my work and my educational experiences. Throughout college and graduate school, I worked as a teacher of children with severe to profound disabilities. Simultaneously in my Ph.D. program, I was learning about children’s development, mother-child interactions, and families of typically developing children. As a postdoctoral fellow, I began to join these two worlds. I began exploring how theories, approaches, and findings derived from work on typically developing children might apply to children with developmental disabilities. I also began examining with Elisabeth Dykens how children with particular genetic disorders differed in their behavioral development, and how behaviors of children with particular syndromes might affect their family members. The VKC combines a strongly held, multidisciplinary focus with a rock-solid commitment to children with disabilities and their families. In addition to the researchers themselves, a skilled, dedicated group of VKC staff help everyone to get things done. With support from several private foundations and federal agencies, the VKC has expanded services to persons with disabilities and their families. Where else can one work every day with such a talented, committed group of scientists, staff, and service providers, all of whom share a mission to learn about and to serve individuals with disabilities and their families?

Robert Hodapp, Ph.D. - Special Education

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The VKC has become a home to my family in the few short years since my daughter’s birth. We’ve benefited in countless ways from its research, professional training (I was a LEND Family Trainee), workshops, and other community programs. I also have the opportunity to learn and give back to the Center as part of the Community Advisory Council and the Public Policy Committee. The VKC has been an incredible resource to me as a parent but has also been critical in my development as a professional, helping me to become a voice for other families through special education advocacy. From both perspectives, I cannot overstate the importance of the Center’s role in creating more meaningful and productive lives for people like my daughter, and I am proud to be part of an organization that continues to lead this charge both locally and nationally.

Christine Sartain - Parent, LEND Trainee, and Disability Advocate

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In my role, I assist families who have children with autism spectrum disorder. I have the opportunity each day to hear directly from families about their struggles and triumphs. Even the simplest of daily routines can be difficult for families who have children with autism. I feel lucky that families choose to share their stories with me. I also feel extremely lucky to be a part of the Vanderbilt Kennedy Center where many talented researchers are trying to determine the best interventions and treatments for the families I speak with. Daily, I listen to families, validate their concerns and feelings, and hopefully offer them a service or resources to address their needs. The Vanderbilt Kennedy Center is a true asset to these families as well as to the University, the greater Nashville community, and others who are much farther away.

Nina Harris - VKC Disability Professional

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