Fifty years ago my husband and I had the privilege of hearing President John F. Kennedy speak to the community at the football stadium at Vanderbilt University. It was a great day. We were proud of the University. We are both graduates and my retired husband was part of the Medical faculty for 45 years. Although we were very familiar with the University and the Medical Center, we were not as connected to the Kennedy Center until the birth of our grandson William, who has Down syndrome. He is now 17. William and his parents have received innumerable services from the Center, including hands-on intervention participating in research projects and receiving support at every step of the journey.

Susan M. Spickard - Grandmother

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In my role, I assist families who have children with autism spectrum disorder. I have the opportunity each day to hear directly from families about their struggles and triumphs. Even the simplest of daily routines can be difficult for families who have children with autism. I feel lucky that families choose to share their stories with me. I also feel extremely lucky to be a part of the Vanderbilt Kennedy Center where many talented researchers are trying to determine the best interventions and treatments for the families I speak with. Daily, I listen to families, validate their concerns and feelings, and hopefully offer them a service or resources to address their needs. The Vanderbilt Kennedy Center is a true asset to these families as well as to the University, the greater Nashville community, and others who are much farther away.

Nina Harris - VKC Disability Professional

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I have been attracted to developmental disabilities research since graduate school, when I was involved in cloning the fragile X syndrome locus. I continued work to solve genetic puzzles related to developmental disabilities as a postdoctoral fellow studying Prader-Willi and Angelman syndrome. I have extended these efforts across the genome in collaborative efforts to discover the nature of genetic variation underlying autism. Studying how systems are affected by risk factors may ultimately lead to improved therapeutic options for vulnerable populations. The VKC is unique as a trans-institutional Center with activities spanning an extraordinary spectrum from community outreach and family support to basic research. It is this reach across so many disciplines, providing opportunities to bring different kinds of expertise and investigators together to attack the problem of diagnosing, treating, and deciphering the underlying biological basis of a developmental disorder that I find so compelling.

James Sutcliffe, Ph.D. - Molecular Physiology & Biophysics

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The VKC has become a home to my family in the few short years since my daughter’s birth. We’ve benefited in countless ways from its research, professional training (I was a LEND Family Trainee), workshops, and other community programs. I also have the opportunity to learn and give back to the Center as part of the Community Advisory Council and the Public Policy Committee. The VKC has been an incredible resource to me as a parent but has also been critical in my development as a professional, helping me to become a voice for other families through special education advocacy. From both perspectives, I cannot overstate the importance of the Center’s role in creating more meaningful and productive lives for people like my daughter, and I am proud to be part of an organization that continues to lead this charge both locally and nationally.

Christine Sartain - Parent, LEND Trainee, and Disability Advocate

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