The Kennedy Center has been so important to our family. Our son Seth who is now 25 was born with Williams syndrome, which presents both physical and cognitive challenges. The programs at the Vanderbilt Kennedy Center have focused on Seth’s abilities and highlighted his talents. Seth has participated for the past 9 years in a music camp for individuals with Williams syndrome, which takes place in Nashville at the Kennedy Center with the campers writing and performing a song at the Grand Ole Opry and participating in research during the week. It has been transformative for Seth and he has made life-long friends through these amazing opportunities.

Becky and Chris Link - Parents

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[The VKC] is an absolutely amazing place to work, but more importantly, people here truly help to change lives for the better. I’ve worked here in some capacity since I graduated from the Master’s of Special Education program in 2007, and I cannot think of a better place to refer families who have a loved one with a disability. In my own work, we are helping high school students with autism and their families prepare for the transition from high school, and we are also helping faith communities as they support people with disabilities to find and hold employment.

Jenny Gustafson - Special Education Alumna and VKC Disability Professional

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My interest in studying developmental disabilities arose from both my work and my educational experiences. Throughout college and graduate school, I worked as a teacher of children with severe to profound disabilities. Simultaneously in my Ph.D. program, I was learning about children’s development, mother-child interactions, and families of typically developing children. As a postdoctoral fellow, I began to join these two worlds. I began exploring how theories, approaches, and findings derived from work on typically developing children might apply to children with developmental disabilities. I also began examining with Elisabeth Dykens how children with particular genetic disorders differed in their behavioral development, and how behaviors of children with particular syndromes might affect their family members. The VKC combines a strongly held, multidisciplinary focus with a rock-solid commitment to children with disabilities and their families. In addition to the researchers themselves, a skilled, dedicated group of VKC staff help everyone to get things done. With support from several private foundations and federal agencies, the VKC has expanded services to persons with disabilities and their families. Where else can one work every day with such a talented, committed group of scientists, staff, and service providers, all of whom share a mission to learn about and to serve individuals with disabilities and their families?

Robert Hodapp, Ph.D. - Special Education

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The VKC has become a home to my family in the few short years since my daughter’s birth. We’ve benefited in countless ways from its research, professional training (I was a LEND Family Trainee), workshops, and other community programs. I also have the opportunity to learn and give back to the Center as part of the Community Advisory Council and the Public Policy Committee. The VKC has been an incredible resource to me as a parent but has also been critical in my development as a professional, helping me to become a voice for other families through special education advocacy. From both perspectives, I cannot overstate the importance of the Center’s role in creating more meaningful and productive lives for people like my daughter, and I am proud to be part of an organization that continues to lead this charge both locally and nationally.

Christine Sartain - Parent, LEND Trainee, and Disability Advocate

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