Reflections

As part of the Vanderbilt Kennedy Center's 50th anniversary celebration, families, researchers, staff, trainees, and others shared their reflections. View a sample below, and select "more" to view additional comments.

A reflection from a family
John and Janet Shouse - Parents and Disability Advocates

We have a son with autism who is now 19, and our personal connection with the VKC goes back almost 16 years. We have come to know the VKC as a trusted partner, an invaluable resource, and a source of encouragement for ourselves and others in Tennessee and our region.

John and Janet Shouse - Parents and Disability Advocates

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A reflection from a trainee
Christine Sartain - Parent, LEND Trainee, and Disability Advocate

The VKC has become a home to my family in the few short years since my daughter’s birth. We’ve benefited in countless ways from its research, professional training (I was a LEND Family Trainee), workshops, and other community programs. I also have the opportunity to learn and give back to the Center as part of the Community Advisory Council and the Public Policy Committee. The VKC has been an incredible resource to me as a parent but has also been critical in my development as a professional, helping me to become a voice for other families through special education advocacy. From both perspectives, I cannot overstate the importance of the Center’s role in creating more meaningful and productive lives for people like my daughter, and I am proud to be part of an organization that continues to lead this charge both locally and nationally.

Christine Sartain - Parent, LEND Trainee, and Disability Advocate

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A reflection from a professional
Nina Harris - VKC Disability Professional

In my role, I assist families who have children with autism spectrum disorder. I have the opportunity each day to hear directly from families about their struggles and triumphs. Even the simplest of daily routines can be difficult for families who have children with autism. I feel lucky that families choose to share their stories with me. I also feel extremely lucky to be a part of the Vanderbilt Kennedy Center where many talented researchers are trying to determine the best interventions and treatments for the families I speak with. Daily, I listen to families, validate their concerns and feelings, and hopefully offer them a service or resources to address their needs. The Vanderbilt Kennedy Center is a true asset to these families as well as to the University, the greater Nashville community, and others who are much farther away.

Nina Harris - VKC Disability Professional

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A reflection from a researcher

One of the reasons I love working in academia, especially within the field of clinical research informatics, is the opportunity to see real-world examples of impact from our work on a regular basis. It is most rewarding to think that the work our teams are doing today might literally provide service or contribute to research that will make a difference in the lives of people we strive to help tomorrow. By focusing energy and attention on rare disease and developmental disabilities research, we have the potential to help communities that are most deserving and in great need of assistance. I began collaborating with Kennedy Center teams several years ago and quickly grew to appreciate the culture and professionalism of faculty, staff, and volunteers. Working with the Kennedy Center has been transformative.

Paul Harris, Ph.D. - Biomedical Informatics and Biomedical Engineering

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Submit your reflection here

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