Reflections
As part of the Vanderbilt Kennedy Center's 50th anniversary celebration, families, researchers, staff, trainees, and others shared their reflections. View a sample below, and select "more" to view additional comments.
| A reflection from a family |
 | The Kennedy Center has been so important to our family. Our son Seth who is now 25 was born with Williams syndrome, which presents both physical and cognitive challenges. The programs at the Vanderbilt Kennedy Center have focused on Seth’s abilities and highlighted his talents. Seth has participated for the past 9 years in a music camp for individuals with Williams syndrome, which takes place in Nashville at the Kennedy Center with the campers writing and performing a song at the Grand Ole Opry and participating in research during the week. It has been transformative for Seth and he has made life-long friends through these amazing opportunities. Becky and Chris Link - Parents See More... |
| A reflection from a professional |
 | Recently a mother shared with me that over four decades ago she gave birth to a baby girl with Down syndrome. The medical staff and others strongly encouraged her to give her daughter over to an institution as it was the best option at the time. While in the hospital a social worker from the Kennedy Center discussed services and resources available to her if she chose to keep her child in her care. As a result of their conversation she decided to raise her child with the support of her family and this Center. This family is currently thriving in their community. To work somewhere that touches people’s lives on such an incredible level is an experience I am very fortunate to be part of. Sarah Harvey - VKC Disability Professional See More... |
| A reflection from a trainee |
 | The VKC has become a home to my family in the few short years since my daughter’s birth. We’ve benefited in countless ways from its research, professional training (I was a LEND Family Trainee), workshops, and other community programs. I also have the opportunity to learn and give back to the Center as part of the Community Advisory Council and the Public Policy Committee. The VKC has been an incredible resource to me as a parent but has also been critical in my development as a professional, helping me to become a voice for other families through special education advocacy. From both perspectives, I cannot overstate the importance of the Center’s role in creating more meaningful and productive lives for people like my daughter, and I am proud to be part of an organization that continues to lead this charge both locally and nationally. Christine Sartain - Parent, LEND Trainee, and Disability Advocate See More... |
| A reflection from a researcher |
 | I have been attracted to developmental disabilities research since graduate school, when I was involved in cloning the fragile X syndrome locus. I continued work to solve genetic puzzles related to developmental disabilities as a postdoctoral fellow studying Prader-Willi and Angelman syndrome. I have extended these efforts across the genome in collaborative efforts to discover the nature of genetic variation underlying autism. Studying how systems are affected by risk factors may ultimately lead to improved therapeutic options for vulnerable populations. The VKC is unique as a trans-institutional Center with activities spanning an extraordinary spectrum from community outreach and family support to basic research. It is this reach across so many disciplines, providing opportunities to bring different kinds of expertise and investigators together to attack the problem of diagnosing, treating, and deciphering the underlying biological basis of a developmental disorder that I find so compelling. James Sutcliffe, Ph.D. - Molecular Physiology & Biophysics See More... |
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