We have a son with autism who is now 19, and our personal connection with the VKC goes back almost 16 years. We have come to know the VKC as a trusted partner, an invaluable resource, and a source of encouragement for ourselves and others in Tennessee and our region.

John and Janet Shouse - Parents and Disability Advocates

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As a Postdoctoral Fellow, I was a trainee with LEND (Leadership Education in Neurodevelopmental and Related Disabilities]. This experience was invaluable to my current work as a clinical psychologist who specializes in diagnosing very young children with autism. My LEND training enhanced my abilities to understand families’ perspectives, to collaborate across disciplines, and to maintain cultural competence, all of which helps me provide better care to children and parents at a very difficult moment in their lives.

Amy Weitlauf - VKC Member and Former LEND Trainee

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My father was a psychiatrist, and as a young child, I spent Saturdays at his clinic and so was accustomed to being with people with disabilities. Later, we lived on the grounds of a state mental health hospital, where I had many friends with different types of developmental and psychiatric difficulties. I wanted to better understand their lives and stories. At the Yale Child Study Center, my experiences with children with fragile X syndrome started me on the path of looking at other genetic syndromes, since they offer unique windows for understanding the connections among genes, brain, and behavior, as well as specific ways to optimize interventions with individuals and families. My husband and I moved to Vanderbilt because we wanted to be part of a community of researchers and others dedicated to understanding people with developmental disabilities on a number of different levels—genetics, brain science, treatments, supporting families, public policy, and advocacy. The VKC embodied all of that in one place.

Elisabeth Dykens, Ph.D. - Psychology, Psychiatry, and Pediatrics

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In my role, I assist families who have children with autism spectrum disorder. I have the opportunity each day to hear directly from families about their struggles and triumphs. Even the simplest of daily routines can be difficult for families who have children with autism. I feel lucky that families choose to share their stories with me. I also feel extremely lucky to be a part of the Vanderbilt Kennedy Center where many talented researchers are trying to determine the best interventions and treatments for the families I speak with. Daily, I listen to families, validate their concerns and feelings, and hopefully offer them a service or resources to address their needs. The Vanderbilt Kennedy Center is a true asset to these families as well as to the University, the greater Nashville community, and others who are much farther away.

Nina Harris - VKC Disability Professional

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