Reflections

As part of the Vanderbilt Kennedy Center's 50th anniversary celebration, families, researchers, staff, trainees, and others shared their reflections. View a sample below, and select "more" to view additional comments.

A reflection from a family
Emma Shouse - Sibling

My family has been connected to the work of the Vanderbilt Kennedy Center for over 15 years, since my younger brother Evan, now 18, was diagnosed with autism spectrum disorder at age 3. Evan has participated in countless educational programs, clinical services, research studies, and activities over the years. The Kennedy Center staff and programs have provided wonderful support to my parents. Especially important to me is the valuable supports that if has offered to young and adult siblings like myself of brothers and sisters with disabilities.

Emma Shouse - Sibling

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A reflection from a researcher

One of the reasons I love working in academia, especially within the field of clinical research informatics, is the opportunity to see real-world examples of impact from our work on a regular basis. It is most rewarding to think that the work our teams are doing today might literally provide service or contribute to research that will make a difference in the lives of people we strive to help tomorrow. By focusing energy and attention on rare disease and developmental disabilities research, we have the potential to help communities that are most deserving and in great need of assistance. I began collaborating with Kennedy Center teams several years ago and quickly grew to appreciate the culture and professionalism of faculty, staff, and volunteers. Working with the Kennedy Center has been transformative.

Paul Harris, Ph.D. - Biomedical Informatics and Biomedical Engineering

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A reflection from a professional
Sarah Harvey - VKC Disability Professional

Recently a mother shared with me that over four decades ago she gave birth to a baby girl with Down syndrome. The medical staff and others strongly encouraged her to give her daughter over to an institution as it was the best option at the time. While in the hospital a social worker from the Kennedy Center discussed services and resources available to her if she chose to keep her child in her care. As a result of their conversation she decided to raise her child with the support of her family and this Center. This family is currently thriving in their community. To work somewhere that touches people’s lives on such an incredible level is an experience I am very fortunate to be part of.

Sarah Harvey - VKC Disability Professional

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A reflection from a trainee
Amy Weitlauf - VKC Member and Former LEND Trainee

As a Postdoctoral Fellow, I was a trainee with LEND (Leadership Education in Neurodevelopmental and Related Disabilities]. This experience was invaluable to my current work as a clinical psychologist who specializes in diagnosing very young children with autism. My LEND training enhanced my abilities to understand families’ perspectives, to collaborate across disciplines, and to maintain cultural competence, all of which helps me provide better care to children and parents at a very difficult moment in their lives.

Amy Weitlauf - VKC Member and Former LEND Trainee

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