Reflections

As part of the Vanderbilt Kennedy Center's 50th anniversary celebration, families, researchers, staff, trainees, and others shared their reflections. View a sample below, and select "more" to view additional comments.

A reflection from a family
Emma Shouse - Sibling

My family has been connected to the work of the Vanderbilt Kennedy Center for over 15 years, since my younger brother Evan, now 18, was diagnosed with autism spectrum disorder at age 3. Evan has participated in countless educational programs, clinical services, research studies, and activities over the years. The Kennedy Center staff and programs have provided wonderful support to my parents. Especially important to me is the valuable supports that if has offered to young and adult siblings like myself of brothers and sisters with disabilities.

Emma Shouse - Sibling

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A reflection from a trainee

I am the proud parent of four young children, one of whom has Down syndrome. Besides benefiting from their vast array of supports and services, I am currently receiving valuable research experience as a doctoral student in special education and receiving specialized disability-specific training through the VKC.

Thomas Boehm - Parent, Doctoral Student in Special Education, and VKC UCEDD Trainee

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A reflection from a professional
Sarah Harvey - VKC Disability Professional

Recently a mother shared with me that over four decades ago she gave birth to a baby girl with Down syndrome. The medical staff and others strongly encouraged her to give her daughter over to an institution as it was the best option at the time. While in the hospital a social worker from the Kennedy Center discussed services and resources available to her if she chose to keep her child in her care. As a result of their conversation she decided to raise her child with the support of her family and this Center. This family is currently thriving in their community. To work somewhere that touches people’s lives on such an incredible level is an experience I am very fortunate to be part of.

Sarah Harvey - VKC Disability Professional

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A reflection from a researcher
Robert Hodapp, Ph.D. - Special Education

My interest in studying developmental disabilities arose from both my work and my educational experiences. Throughout college and graduate school, I worked as a teacher of children with severe to profound disabilities. Simultaneously in my Ph.D. program, I was learning about children’s development, mother-child interactions, and families of typically developing children. As a postdoctoral fellow, I began to join these two worlds. I began exploring how theories, approaches, and findings derived from work on typically developing children might apply to children with developmental disabilities. I also began examining with Elisabeth Dykens how children with particular genetic disorders differed in their behavioral development, and how behaviors of children with particular syndromes might affect their family members. The VKC combines a strongly held, multidisciplinary focus with a rock-solid commitment to children with disabilities and their families. In addition to the researchers themselves, a skilled, dedicated group of VKC staff help everyone to get things done. With support from several private foundations and federal agencies, the VKC has expanded services to persons with disabilities and their families. Where else can one work every day with such a talented, committed group of scientists, staff, and service providers, all of whom share a mission to learn about and to serve individuals with disabilities and their families?

Robert Hodapp, Ph.D. - Special Education

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