Reflections

As part of the Vanderbilt Kennedy Center's 50th anniversary celebration, families, researchers, staff, trainees, and others shared their reflections. View a sample below, and select "more" to view additional comments.

A reflection from a family
Tina Prochaska - Sibling

My involvement with the Vanderbilt Kennedy Center has been through Tennessee Adult Brothers and Sisters (TABS), a support group for adults who have siblings with special needs. We are the first generation to grow up with our siblings kept at home, instead of being institutionalized. That brings many wonderful blessings but also brings challenges. TABS, with the Vanderbilt Kennedy Center, has helped us navigate this new course.

Tina Prochaska - Sibling

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A reflection from a researcher
Beth Malow, M.D., M.S. - Neurology and Pediatrics

Sleep is an integral part of health and influences daytime behavior in a variety of neurological disorders. After 10 years of studying the effects of sleep disorders on epilepsy, I decided to apply this model to autism spectrum disorder (ASD). A major influence on me was my 6-year-old son, who is on the spectrum and, thankfully, is an excellent sleeper. I became immersed in understanding ASD. I realized that identifying and treating disordered sleep in autism could make a huge difference in the lives of affected children and their families. The VKC has provided me with many resources to carry out my work. The most important resource is the network of collaborators within the Center who have assisted in developing ideas for sleep research projects and allowed me to integrate behavioral, genetic, and circadian measures into my research.

Beth Malow, M.D., M.S. - Neurology and Pediatrics

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A reflection from a trainee

I am the proud parent of four young children, one of whom has Down syndrome. Besides benefiting from their vast array of supports and services, I am currently receiving valuable research experience as a doctoral student in special education and receiving specialized disability-specific training through the VKC.

Thomas Boehm - Parent, Doctoral Student in Special Education, and VKC UCEDD Trainee

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A reflection from a professional
Nina Harris - VKC Disability Professional

In my role, I assist families who have children with autism spectrum disorder. I have the opportunity each day to hear directly from families about their struggles and triumphs. Even the simplest of daily routines can be difficult for families who have children with autism. I feel lucky that families choose to share their stories with me. I also feel extremely lucky to be a part of the Vanderbilt Kennedy Center where many talented researchers are trying to determine the best interventions and treatments for the families I speak with. Daily, I listen to families, validate their concerns and feelings, and hopefully offer them a service or resources to address their needs. The Vanderbilt Kennedy Center is a true asset to these families as well as to the University, the greater Nashville community, and others who are much farther away.

Nina Harris - VKC Disability Professional

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