Fifty years ago my husband and I had the privilege of hearing President John F. Kennedy speak to the community at the football stadium at Vanderbilt University. It was a great day. We were proud of the University. We are both graduates and my retired husband was part of the Medical faculty for 45 years. Although we were very familiar with the University and the Medical Center, we were not as connected to the Kennedy Center until the birth of our grandson William, who has Down syndrome. He is now 17. William and his parents have received innumerable services from the Center, including hands-on intervention participating in research projects and receiving support at every step of the journey.

Susan M. Spickard - Grandmother

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Early in my career my lab focused on fundamental neurobiology and identifying genes and proteins that impact chemical signaling. When I came to Vanderbilt and joined the VKC, I was encouraged to consider how my work on serotonin and dopamine transporters might link to neurodevelopmental disorders. I was impressed early on with the breadth of talent assembled by the VKC and the connections I made in this community started me down that path. My lab’s work is very focused, just one step, and our efforts might  be wasted if not embraced in a larger context. I started my translational efforts with a VKC Hobbs Discovery Grant, and have been excited to see these efforts blossom. This grant allowed me to develop approaches to scan human transporter genes for mutations, efforts that led to the discovery or alterations in the dopamine transporter in subjects with ADHD, as well as changes in the serotonin transporter gene in subjects with autism. These mutations, which remain under active study in our lab as well as with collaborators, have led to significant funding from the NIH, and have been transferred into animal models so that we may gain insights into brain changes and possibly develop new treatments.

Randy Blakely, Ph.D. - Pharmacology and Psychiatry

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In my role, I assist families who have children with autism spectrum disorder. I have the opportunity each day to hear directly from families about their struggles and triumphs. Even the simplest of daily routines can be difficult for families who have children with autism. I feel lucky that families choose to share their stories with me. I also feel extremely lucky to be a part of the Vanderbilt Kennedy Center where many talented researchers are trying to determine the best interventions and treatments for the families I speak with. Daily, I listen to families, validate their concerns and feelings, and hopefully offer them a service or resources to address their needs. The Vanderbilt Kennedy Center is a true asset to these families as well as to the University, the greater Nashville community, and others who are much farther away.

Nina Harris - VKC Disability Professional

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The VKC has become a home to my family in the few short years since my daughter’s birth. We’ve benefited in countless ways from its research, professional training (I was a LEND Family Trainee), workshops, and other community programs. I also have the opportunity to learn and give back to the Center as part of the Community Advisory Council and the Public Policy Committee. The VKC has been an incredible resource to me as a parent but has also been critical in my development as a professional, helping me to become a voice for other families through special education advocacy. From both perspectives, I cannot overstate the importance of the Center’s role in creating more meaningful and productive lives for people like my daughter, and I am proud to be part of an organization that continues to lead this charge both locally and nationally.

Christine Sartain - Parent, LEND Trainee, and Disability Advocate

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