Reflections

As part of the Vanderbilt Kennedy Center's 50th anniversary celebration, families, researchers, staff, trainees, and others shared their reflections. View a sample below, and select "more" to view additional comments.

A reflection from a family

I have had a 21-year personal relationship with those who have special needs [because of our son, adopted at birth]. I do not know what my husband and I, both eggheads, would have done without the practical and research-based wisdom of the VKC. Nicholas’s first VKC program was TRIAD, a place where we all learned how to live with structure, what to attend to, what to let go. We also learned that we were not alone and that the professionals at VKC were actively working to make my family’s and other families’ lives better. That matters when your child is nothing like any other child you know. But my child could do more….The VKC has showed us how another way is possible. That our children can and will have another way.

Robbie Pinter - Parent

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A reflection from a professional
Sarah Harvey - VKC Disability Professional

Recently a mother shared with me that over four decades ago she gave birth to a baby girl with Down syndrome. The medical staff and others strongly encouraged her to give her daughter over to an institution as it was the best option at the time. While in the hospital a social worker from the Kennedy Center discussed services and resources available to her if she chose to keep her child in her care. As a result of their conversation she decided to raise her child with the support of her family and this Center. This family is currently thriving in their community. To work somewhere that touches people’s lives on such an incredible level is an experience I am very fortunate to be part of.

Sarah Harvey - VKC Disability Professional

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A reflection from a researcher
Beth Malow, M.D., M.S. - Neurology and Pediatrics

Sleep is an integral part of health and influences daytime behavior in a variety of neurological disorders. After 10 years of studying the effects of sleep disorders on epilepsy, I decided to apply this model to autism spectrum disorder (ASD). A major influence on me was my 6-year-old son, who is on the spectrum and, thankfully, is an excellent sleeper. I became immersed in understanding ASD. I realized that identifying and treating disordered sleep in autism could make a huge difference in the lives of affected children and their families. The VKC has provided me with many resources to carry out my work. The most important resource is the network of collaborators within the Center who have assisted in developing ideas for sleep research projects and allowed me to integrate behavioral, genetic, and circadian measures into my research.

Beth Malow, M.D., M.S. - Neurology and Pediatrics

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A reflection from a trainee
Amy Weitlauf - VKC Member and Former LEND Trainee

As a Postdoctoral Fellow, I was a trainee with LEND (Leadership Education in Neurodevelopmental and Related Disabilities]. This experience was invaluable to my current work as a clinical psychologist who specializes in diagnosing very young children with autism. My LEND training enhanced my abilities to understand families’ perspectives, to collaborate across disciplines, and to maintain cultural competence, all of which helps me provide better care to children and parents at a very difficult moment in their lives.

Amy Weitlauf - VKC Member and Former LEND Trainee

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