Reflections
As part of the Vanderbilt Kennedy Center's 50th anniversary celebration, families, researchers, staff, trainees, and others shared their reflections. View a sample below, and select "more" to view additional comments.
| A reflection from a family |
 | The Kennedy Center has been so important to our family. Our son Seth who is now 25 was born with Williams syndrome, which presents both physical and cognitive challenges. The programs at the Vanderbilt Kennedy Center have focused on Seth’s abilities and highlighted his talents. Seth has participated for the past 9 years in a music camp for individuals with Williams syndrome, which takes place in Nashville at the Kennedy Center with the campers writing and performing a song at the Grand Ole Opry and participating in research during the week. It has been transformative for Seth and he has made life-long friends through these amazing opportunities. Becky and Chris Link - Parents See More... |
| A reflection from a researcher |
 | Sleep is an integral part of health and influences daytime behavior in a variety of neurological disorders. After 10 years of studying the effects of sleep disorders on epilepsy, I decided to apply this model to autism spectrum disorder (ASD). A major influence on me was my 6-year-old son, who is on the spectrum and, thankfully, is an excellent sleeper. I became immersed in understanding ASD. I realized that identifying and treating disordered sleep in autism could make a huge difference in the lives of affected children and their families. The VKC has provided me with many resources to carry out my work. The most important resource is the network of collaborators within the Center who have assisted in developing ideas for sleep research projects and allowed me to integrate behavioral, genetic, and circadian measures into my research. Beth Malow, M.D., M.S. - Neurology and Pediatrics See More... |
| A reflection from a trainee |
| I am the proud parent of four young children, one of whom has Down syndrome. Besides benefiting from their vast array of supports and services, I am currently receiving valuable research experience as a doctoral student in special education and receiving specialized disability-specific training through the VKC. Thomas Boehm - Parent, Doctoral Student in Special Education, and VKC UCEDD Trainee See More... |
| A reflection from a professional |
 | In my role, I assist families who have children with autism spectrum disorder. I have the opportunity each day to hear directly from families about their struggles and triumphs. Even the simplest of daily routines can be difficult for families who have children with autism. I feel lucky that families choose to share their stories with me. I also feel extremely lucky to be a part of the Vanderbilt Kennedy Center where many talented researchers are trying to determine the best interventions and treatments for the families I speak with. Daily, I listen to families, validate their concerns and feelings, and hopefully offer them a service or resources to address their needs. The Vanderbilt Kennedy Center is a true asset to these families as well as to the University, the greater Nashville community, and others who are much farther away. Nina Harris - VKC Disability Professional See More... |
Submit your reflection here