Community Engagement and Collaboration in Research Development and Implementation

This Vanderbilt Kennedy Center Research Ethics Grand Rounds Panel Discussion was presented on May 18, 2023.


This panel discussion will focus on what “Nothing About Us Without Us” can look like within a research setting. How can community involvement -- namely, participation of disability self-advocates and their family members -- be incorporated in the planning stages of clinical research and/or intervention? What might some challenges be? What are some of the advantages?


  • Beth Malow, M.D., M.S., Burry Chair in Cognitive Childhood Development; Professor of Neurology and Pediatrics; Director, Vanderbilt Sleep Disorders Division
  • Jessica Schwartzman, Ph.D., Assistant Professor of Pediatrics
  • Alexandra Jacobs, Self-Advocate
  • Nicole Noblet, Self-Advocate
  • Sarika Peters, Ph.D. (Moderator), Associate Professor of Pediatrics and Psychiatry & Behavioral Sciences

Last Updated: 5/22/2023 12:33:38 PM

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