Principal Investigator: Jeffrey L. Neul, M.D., Ph.D.
The Down Syndrome Research Registry connects families interested in research with researchers who want to better understand the challenges some individuals with Down syndrome may experience.
Child or adults with Down syndrome up to age 18.
One 60 minute appointment to complete questionnaires
about demographics, health, and developmental history, and to provide a blood sample for DNA. There is no compensation for participation.
Monroe Carell Jr. Children’s Hospital at Vanderbilt
Any child or adult with Down syndrome
Down Syndrome Registery Coordinator
Last Updated: Thursday, December 17, 2020