Help us create future research activities focused on improving health outcomes for people with disabilities

Principal Investigator: Beth Malow, M.D., M.S.

Description

The ASSERT: All StakeholderS Engaged in Research Together project seeks to engage people on the autism spectrum, with Down syndrome, or with other intellectual or developmental disabilities (IDD) along with caregivers, clinicians, and researchers. Our goal is to build an online learning community where these stakeholders learn about research together in a way that is collaborative and multidirectional (all learners gain knowledge from each other). Through this project, stakeholders will “assert” themselves and make their voices heard as they work together as partners in research to improve health outcomes.

What the study will ask you to do:

  • Be willing and able to provide consent;
  • Complete online surveys. Each survey should take about 10 minutes to complete;
  • Take part in online video sessions over a period of six months, with two sessions to occur each month. Each session will be 60-90 minutes and involve up to 25 participants.

Who can join:

  • People ages 18 or older on the autism spectrum, with Down syndrome, or with IDD;
  • Caregivers (including adult siblings) of a person on the autism spectrum, with Down syndrome, or with IDD;
  • Clinicians who care for those on the autism spectrum, with Down syndrome, or with IDD; and
  • Researcher engaged in research focused on the autism spectrum, Down syndrome, or IDD.

All study activities will take place online. You will be compensated for your time.

For more information, contact: assert@vumc.org

Participant Criteria

People ages 18 or older on the autism spectrum, with Down syndrome, or with IDD. Caregivers, clinicians, and/or researchers working with a person with autism, Down syndrome, or other developmental disabilities or intellectual disabilities.

Compensation

You will be compensated for your time.

Brochure

Download Brochure

Last Updated: Monday, January 24, 2022

Enter your name and contact information and this study's coordinators will contact you if there are openings available.