Principal Investigator: Beth Malow, M.D., M.S.
The ASSERT: All StakeholderS Engaged in Research Together project seeks to engage people on the autism spectrum, with Down syndrome, or with other intellectual or developmental disabilities (IDD) along with caregivers, clinicians, and researchers. Our goal is to build an online learning community where these stakeholders learn about research together in a way that is collaborative and multidirectional (all learners gain knowledge from each other). Through this project, stakeholders will “assert” themselves and make their voices heard as they work together as partners in research to improve health outcomes.
What the study will ask you to do:
- Be willing and able to provide consent;
- Complete online surveys. Each survey should take about 10 minutes to complete;
- Take part in online video sessions over a period of six months, with two sessions to occur each month. Each session will be 60-90 minutes and involve up to 25 participants.
Who can join:
The program is seeking participation from adults on the autism spectrum, those with Down syndrome, or people with other disabilities. Parents, spouses, or adult siblings of people with IDD, clinicians who care for these patients and researchers with an interest in working with people with IDD are also eligible for the research learning sessions.
All study activities will take place online. You will be compensated for your time.
For more information, contact: firstname.lastname@example.org
People ages 18 or older on the autism spectrum, with Down syndrome, or with IDD. Caregivers, clinicians, and/or researchers working with a person with autism, Down syndrome, or other developmental disabilities or intellectual disabilities.
You will be compensated for your time.
Last Updated: Monday, October 24, 2022