Research Opportunity for Girls and Women with Rett Syndrome

Principal Investigator: Jeffrey L. Neul, M.D., Ph.D.


The purpose of this study is to assess a clinician-reported assessment method called the Revised-Motor Behavior Assessment (R-MBA)

What does the study involve?

  • Participants will schedule an appointment to receive a clinical evaluation by a member of the Vanderbilt Rett Syndrome Program clinical team. The evaluation will be videotaped for clinician review and may be used to create future educational materials.
  • Parents will be interviewed and asked to complete questionnaires during the evaluation.

To schedule an appointment, contact:

Participant Criteria

Girls and women of all ages with Rett syndrome




Download Brochure

Last Updated: Tuesday, March 01, 2022

Enter your name and contact information and this study's coordinators will contact you if there are openings available.