Caregivers' Experiences in the Transitioning from Hospital to the School Setting of Children with Special Health-care Needs

Principal Investigator: Alexandra Da Fonte, Ph.D.


We are conducting an anonymous, web-based survey that should take approximately 10-15 minutes to complete.

Inclusion criteria:
Caregivers of (a) children with low incidence disabilities, such as those with who qualify for services under IDEA for autism, intellectual disabilities, multiple disabilities, deafblindness; (b) children with special health-care needs, are those who have or are at an increased risk for a chronic, physical, medical, developmental, behavioral, or emotional condition and who also require health and related services of a type or amount beyond that required by other children; and (c) children between the ages of 2-22.

The reasons for the study:
To learn about parents' experiences with the transition from the hospital to the school for children with special health care needs. We want to see if there are gaps in the planning for going back to school.

Our goal:
Gather information on caregivers’ perspectives and experiences with the transition process from the hospital to the school for children with special health-care needs.

Good results that might come from this study:
The information may help in making suggestions to improve plans for going back to school after a hospital stay.

If you should have any questions about this study, please contact Maggie Davis (graduate student) and Alexandra Da Fonte (faculty) at with your request.

Survey link:

Participant Criteria

Caregivers of children ages 2-22 who have special health-care needs


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Last Updated: Thursday, July 21, 2022

Enter your name and contact information and this study's coordinators will contact you if there are openings available.