Research Registries (Core B)

Autism Research Registry

The Vanderbilt Autism Research Registry is a confidential database that stores profiles of individuals with autism and their preferred method of contact who are interested in participating in research studies. Researchers who study autism through the VKC and who hold faculty positions at the Vanderbilt University Medical Center (VUMC) and/or Vanderbilt University (VU) may access the profiles and collected data in an effort to screen and recruit qualified participants to join their studies.

If you or a family member are on the autism spectrum and are interested in being connected to research at Vanderbilt, you can find more information on the Autism Research Registry HERE

For more information contact vkcresearch@vumc.org or (615) 343-1729.

Down Syndrome Research Registry

Managed by the Division of Developmental Medicine, the Down Syndrome Clinic offers medical evaluations and treatment recommendations, provided by therapists with expertise in physical, occupational, speech, feeding, and nutritional aspects of Down syndrome. Families receiving care at the DS clinic can choose to be a part of the registry. The registry collects data and an optional blood sample from enrolled patients. Adults and children with Down syndrome outside of the DS clinic can enroll too. Participants are asked to create confidential profiles and decide how they prefer to be contacted when they are eligible for new studies. With IRB approval, investigators may request access to the list of participants who have agreed to be contacted for research activities.

If you are interested in learning more about the Down Syndrome Research Registry, CLICK HERE