Studies Related to Rett syndrome current as of Saturday, April 1, 2023
Click on the study title below to receive contact information, brochures and more in-depth information.
Does your daughter or son with disabilities have a paid job? Would you share your experiences and advice with another parent?
Live in Middle TN, be at least 18 years old, and have a family member with intellectual disability or autism who has a paid job (or was recently employed).
Parents will receive $350 for serving as a mentor and completing all project measures.
Help us create future research activities focused on improving health outcomes for people with disabilities
People ages 18 or older on the autism spectrum, with Down syndrome, or with IDD. Caregivers, clinicians, and/or researchers working with a person with autism, Down syndrome, or other developmental disabilities or intellectual disabilities.
You will be compensated for your time.
Is your daughter or son with disabilities interested in finding paid employment? Would you like guidance and support connecting them to a good job?
Live in Middle TN, be at least 18 years old, and have a family member with intellectual disability or autism who is interested in working and has already exited high school.
Parents will receive $250 for completing the “short course” and all project measures.
Research Opportunity for Girls and Women with Rett Syndrome
Girls and women of all ages with Rett syndrome
Studying the reliability of a wearable device to monitor sleep quality in young children with Rett syndrome
Females ages 4-18 with Rett syndrome
Participants will be compensated with $75 for completing the first part and $125 for completing the second part. Parents will also receive a report of results from the sleep study.